Thank you for joining me, César, on my personal journey facing the various challenges of Spinal Muscular Atrophy (SMA). I want this site to be more than just a blog; I aim to provide a glimpse into the victories and failures I face every day due to SMA. My hope is to offer you candid insights into my daily experiences and the resilience that propels me forward, ultimately providing a mix of authentic insights and inspiration drawn from my life.
I plan to use this site to showcase the exercises I’m doing to fight back against SMA. My main form of exercise is through handwriting. The majority of the posts are made through the Nebo app. It’s not just a tool for writing; it’s a mirror reflecting my physical and emotional condition. By capturing my handwriting, I can showcase the nuances of my condition, turning a simple act of writing into a meaningful exercise.
I’m also working on creating videos of me assembling Lego sets (mainly Star Wars) and reviewing them from the perspective of someone with SMA. Legos have only become cooler and more complex, but they are still great tools for maintaining dexterity and challenging fine motor skills.
I’ll also showcase items I use daily to make my life more manageable. I’m always looking through Amazon to find items that could help with different everyday tasks. I’ll be using voice recognition to write these reviews to make it faster than my Nebo posts.
My hope is to get on Spinraza and use the site to document the changes brought about by this science.
I invite you to explore, engage, and be a part of this journey. If you like what I am doing and wish to support me, I have a Patreon link in my social media link above, and of course, following me on my social media helps too. Your support, whether through Patreon or simply by following along, is immensely appreciated and makes a significant difference. The contributions earned here will directly assist in managing my medical expenses and caregiver costs.
Thank you for being here. I hope this is useful or helpful in any way.