I was diagnosed with Spinal Muscular Atrophy (SMA), at the age of ten. I should have been diagnosed at the age of 2, but things were very different. At the age of ten it was a bit more brutal. It was devastating being told I would never be able to walk and that I would have a shorter life. Honestly, it is a day I don’t remember or think of much. A lot has changed since that day.
Here is what I believe, my end didn’t come, but I will see the end of SMA! From a young age I’ve wanted to learn all about SMA. I wanted to set in the news the same things I saw in comics and movies. Stuff similar to superpowers. Something that would eliminate SMA. That day is close.
To me, this is a form of exercise. In this format I can’t cover everything because I am physically writing it. Sadly this is very hard for me, but stay tuned I will be making these post daily.
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