Join me, César, on my personal journey and battle with Spinal Muscular Atrophy (SMA). I plan on using this site as a window into my life, capturing both the victories and challenges I face. From candid posted reveal my daily experiences to the resilience that propels me forward, you’ll find authentic insights and hopefully inspiration.
The main use for this site is to share a few of my exercises that I use to battle SMA, but to also share my story. The majority of the post are made through the app Nebo. It’s not just a tool for writing; it’s a mirror reflecting my physical and emotional condition. By capturing my handwriting, I can visibly showcase the nuances of my condition, turning a simple act of writing into a meaningful exercise.
My real hope is that in the next year I finally get on Spinraza and start a vigorous rehab program to gain back significant function back.
One other exercise is putting together Lego sets, preferably Star Wars Legos! I’ll share my experience, narrate the process of assembling the sets, highlighting both the challenges and rate the difficulty for someone with SMA.
I invite you to explore, engage, and be a part of this journey. If you like what I am doing and wish to support me, I have a Patreon link in my social media link above, and of course following me on my social media helps too. Your support, whether through Patreon, or simply by following along, is immensely appreciated and makes a significant difference. The contributions earned here will directly assist in managing my medical expenses and caregiver costs.
Thank you for being here, and let’s embrace this journey together!