Nursa First I’d like to make a quick mention of where I work for,Nursa. I do Business lntelligence for Nursa, and work with an awesome team. I still have tons to learn, but it’s a learning environment! Without Nursa I would not have the means or Insurance to go through with this adventure of Spinraza. …
Read More It’s All In The MindThe Good Let’s hope I run out of strenght before the end… Got to the hospital early and right away things were going good because I saw a good friend as a nurse! Nick, came to get me and took my vitals and got to catch up! He’s one of my favorites because we both …
Read More The Good, The Bad, and The Utterly Stupid!I’m really grateful for the help and support l’ve had from Bio-gen! They’ve been with me from the start and have stayed with me through each block or difficulty in this quest. Still, getting it is only the start. What I do while on the drug will be more interesting. It’s not enough to just …
Read More Can’t Rebuild Without Breaking Down FirstA lot of good things happen yesterday and I should have written about them, but I used up my energy on my rant. Sorry about that. My goal here is to get on Spinraza, do all I can to reverse what SMA has done, and document all of it. Earlier this week I called to …
Read More Spinraza Update 001